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From: TSS ()
Subject: [CJDVoice] Graham coach Carlock diagnosed with rare illness CJD -- BLUEFIELD, Va.
Date: July 31, 2005 at 10:27 am PST

>>>"It is very courageous of the (Carlock) family to come forward to help people understand CJD," Florence Kranitz, executive director of the non-profit foundation said. "Quite often, families feel very isolated when they find out about CJD. Our mission is to provide support for families. We encourage the family or anyone who has questions to visit our web site www.cjdfoundation.org or call our toll-free support line, 800 659-1991."<<<

CJD VOICE AND CJD WATCH MISSION is to also provide support for ALL cjd and TSE victims and families, not just some of them. WE also provide all available scientific data to the families, not just some of it.

i would personally refrain from asking the new cjd foundation inc. anything, unless it was in written form, now certified.

WHEN ASKING QUESTIONS OR SUBMITTING, please get them in writing. WE must force this issue. just say NO to any oral cjd questionnaire. why else would this cjd questionnaire be oral, secret, not in writing? just keep asking yourself this. how much can a cjd questionnaire cost them. there having to write the data down on something. cjd foundation inc. would not be out of pocket one dime. NOT ONE DIME! IF this cjd questionnaire was submitted IN WRITTEN FORM either by US postal or Electronic mail, then all the family would have to do is copy it themselves, if they wanted to. BUT to continue to force families only to answer questions via the phone and not in writing, should be regarded with great suspicion. WE DESERVE better, we are the majority, 85%+ strong and growing. why are we not good enough to be on the front page of the cjd foundation INC? i will not let this issue die. neither should you...

TSS

----- Original Message -----
From: Terry S. Singeltary Sr.
To: Bovine Spongiform Encephalopathy
Cc: cjdvoice@yahoogroups.com ; BLOODCJD@YAHOOGROUPS.COM
Sent: Sunday, July 31, 2005 11:21 AM
Subject: [CJDVoice] Graham coach Carlock diagnosed with rare illness CJD -- BLUEFIELD, Va.


TSS
Graham coach Carlock diagnosed with rare illness CJD -- VA.
Sun Jul 31, 2005 11:17
68.238.106.127


Graham coach Carlock diagnosed with rare illness
Posted: Saturday, Jul 30, 2005 - 09:17:38 pm EDT
By BILL ARCHER
Bluefield Daily Telegraph

BLUEFIELD, Va. - The family of Coach Glynn Carlock, of one of the region's best known and beloved leaders in sports, education and developing young people to reach their full potential confirmed Friday that the 67-year-old head football coach of the Graham G-Men was diagnosed earlier this week with a rare disorder called Creutzfeld-Jakob Disease.

Carlock became disoriented in mid-July and went to the University of Virginia Medical Center for tests. He and his family returned home, but went back to UVA last weekend where physicians were able to diagnose CJD - a fatal brain disorder that affects about one person per million each year. The Akron, Ohio-based CJD Foundation said the Center for Disease Control revised that number in October of 2004 to about one in 9,000 CJD cases per year in the population group age 55 and older.

"Mom and I have talked it over, and we think it's important for people to have a better understanding of the disease," Glynn Carlock Jr., said Friday morning. "We both think that if it can help somebody, that's what dad would want."

The disease was first diagnosed in the early 1920s by two German neurologists - H.G. Creutzfeldt and A. Jakob - working independently. Since the disease is still very difficult to diagnose, the CJD Foundation works to increase public awareness of the disease.


"It is very courageous of the (Carlock) family to come forward to help people understand CJD," Florence Kranitz, executive director of the non-profit foundation said. "Quite often, families feel very isolated when they find out about CJD. Our mission is to provide support for families. We encourage the family or anyone who has questions to visit our web site www.cjdfoundation.org or call our toll-free support line, 800 659-1991."

Along with its support component, the foundation works with the medical community to help physicians understand more about the disease. "We try to help them understand how to talk to families," Kranitz said. "It's uncomfortable territory for many people."

Kranitz is not a physician. She started learning about the disease after losing her husband to CJD, and took over the foundation in 2002. As an infectious protein, CJD is classified as a prion disease and is related - but not the same thing - as a different disease called bovine spongiform encephalopathy, more commonly known as mad cow disease. Kranitz noted that the CJD variant that develops in some people who eat the meat of cattle infected by BSE usually occurs in people 30 years old and younger.

Carlock was transported from UVA to Westwood Medical Center in Bluefield, Va., late Thursday afternoon. "He's welcome to have friends come by and visit," Glynn Carlock Jr., said. "We don't think they should be there past 8:30 p.m., but it's OK to visit."

Glynn Jr., encouraged well-wishers to send get well cards to the family's residence at 1712 Whitethorn St. Ext, Bluefield, WV 24701. "We'll take them over to Westwood and read them to him," Carlock said.

Carlock started coaching at Graham in 1973. He coached at Bluefield High School for 10 years prior to that.

- Contact Bill Archer at barcher@bdtonline.com

http://www.bdtonline.com/articles/2005/07/31/news/05carlock.txt

TSS

[Non-text portions of this message have been removed]

If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@aol.com, Pat at Ape826@aol.com, Dolly at DBC006@aol.com or Dorothy at DEK@provalue.net.

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[Non-text portions of this message have been removed]

If you have any questions, problems, concerns, etc... please contact Liz at LArmstr853@aol.com, Pat at Ape826@aol.com, Dolly at DBC006@aol.com or Dorothy at DEK@provalue.net.

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YAHOO! GROUPS LINKS

Visit your group "cjdvoice" on the web.

To unsubscribe from this group, send an email to:
cjdvoice-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


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