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From: TSS (216-119-156-151.ipset36.wt.net)
Subject: Re: MCG takes surgical precautions due to CJD MEDICAL/SURGICAL MISHAP (proper TSE surgical procedures NOT followed)
Date: January 14, 2005 at 10:17 am PST
In Reply to: Re: MCG takes surgical precautions due to CJD MEDICAL/SURGICAL MISHAP (proper TSE surgical procedures NOT followed) posted by TSS on January 14, 2005 at 9:46 am:
-------- Original Message --------
Subject: Re: re--CJD medical/surgical precautions
Date: Fri, 14 Jan 2005 11:58:25 -0600
From: "Terry S. Singeltary Sr."
To: Danielle Wong
References:
THIS is good news for all............THANKS!.............TSS
Danielle Wong wrote: >Following is a statement issued January 15, 2005, by Dr. Ralph Caruana,
>Senior Vice President and Chief Medical Officer, MCG Health System:
>
>As part of our precautions, we sent tissue from the January 6, 2005,
>brain biopsy to a laboratory for analysis. The results indicate that we
>were correct in dismissing the possibility of Creuzfeldt-Jakob Disease
>(CJD). The 42-year-old patient has been diagnosed with acute
>demyelinating leukoencephalopathy, in which the body's immune system
>attacks the brain and causes inflammation. His response to steroids has
>been so favorable that he has been discharged.
>
>
>
>
>
>>>>"Terry S. Singeltary Sr." 01/14/05 10:13 AM >>>
>>>>
>>>>
>Hello again Danielle,
>
>in this paper it states ;
>
>
>
>>Instead of having Creutzfeldt-Jakob Disease, the brain disease that
>>resembles the human form of mad cow disease, the patient had a
>>condition in which the body's immune system attacks the brain and
>>causes inflammation.
>>
>>
>
>
>once again, could you please tell me what test you used to rule out
>CJD or any human TSE ??? I am still waiting for an answer about
>that???
>
>
>
>>we have no reason to believe
>>this individual has CJD but are completing testing as a precaution.
>>
>>
>>
>
>YOU would not have taken the precautions IF you did not think there
>was a chance of this unfortunate person having CJD/TSE...
>
>
>
>
>>brain tissue
>>is being biopsied
>>
>>
>>
>
>YOU are aware that a brain biopsy CAN miss diagnosing human TSE?
>IF the portion of the brain biopsied is not the part of the brain that
>is
>TSE. THIS is very possible.
>
>
>
>>But the patient, now receiving steroid treatment, is
>>getting better, Caruana said. That is leading doctors to think he
>>doesn't have CJD,
>>
>>
>
>
>WHETHER or not you are aware of this, but some CJD victims
>given High dose Steriods DO rally for a while before
>succumbing to this disease.
>
>SO again, i would be most interested in knowing exactly what
>kind of test the hospital used to rule out CJD ?
>
>THIS does not fall into the patient confidentiality laws.
>
>YOUR hospital does have an obligation to the divulge this info
>to the public. anything less will be viewed as being very suspicious.
>nothing new to us about this though...happens all the time///
>
>Thank You,
>
>Terry S. Singeltary Sr.
>CJD WATCH
>
>
>
>Danielle Wong wrote:
>
>
>
>>Dear Mr. Singeltary,
>>Thanks for your interest. I was waiting to respond to your inquiry
>>
>>
>once
>
>
>>the test results were back. As the article mentioned, the brain
>>
>>
>tissue
>
>
>>is being biopsied and we continue to await results. As subsequent
>>articles and other media have indicated, we have no reason to believe
>>this individual has CJD but are completing testing as a precaution.
>>
>>
>>Danielle Wong Moores
>>Media Relations Manager
>>MCG Health, Inc.
>>1120 15th St., BA 8216
>>Augusta, GA 30912
>>706-721-9566
>>706-721-5735 (fax)
>>dwong@mail.mcg.edu
>>
>>
>>
>>
>>
>>>>>"Terry S. Singeltary Sr." 01/13/05 11:19 AM >>>
>>>>>
>>>>>
>>>>>
>>>>>
>> final transmission, please reply......
>>
>>-------- Original Message --------
>>Subject: re--CJD medical/surgical precautions
>>Date: Wed, 12 Jan 2005 14:42:00 -0600
>>From: "Terry S. Singeltary Sr."
>>To: dwong@mail.mcg.edu
>>
>>
>>
>>Greetings Danielle,
>>
>>my name is Terry S. Singeltary Sr. and I belong to several groups,
>>CJD Watch and CJD Voice. I lost my mother to hvCJD
>>(Heidenhain Variant Creutzfeldt Jakob disease).
>>anyway, we are aware of a surgical scare at your hospital from
>>a suspect CJD case. THE media states that ;
>>
>>could you please tell us what the Definitive test was and what the
>>findings
>>were ???
>>
>>
>>Thank you,
>>
>>kind regards,
>>
>>Terry S. Singeltary
>>
>>
>>
>>
>>
>>>But the patient, now receiving steroid treatments, is getting
>>>
>>>
>better,
>
>
>>>
>>>
>>>
>>>
>>
>>
>>
>>
>>>Caruana said. That is leading doctors to think he doesn't have CJD,
>>>
>>>
>>>
>>>
>>
>>
>>
>>
>>>which is invariably progressive and fatal, he said. Definitive test
>>>results are expected today or Thursday.
>>>
>>>
>>>
>>>
>>>
>>Sr
>>
>>CJD Watch
>>
>>http://www.fortunecity.com/healthclub/cpr/349/part1cjd.htm
>>
>>
>>
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>>
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>>
>>
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