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From: TSS (216-119-144-64.ipset24.wt.net)
Subject: Re: MCG takes surgical precautions due to CJD MEDICAL/SURGICAL MISHAP (proper TSE surgical procedures NOT followed)
Date: January 14, 2005 at 9:46 am PST

In Reply to: Re: MCG takes surgical precautions due to CJD MEDICAL/SURGICAL MISHAP (proper TSE surgical procedures NOT followed) posted by TSS on January 13, 2005 at 2:47 pm:

-------- Original Message --------
Subject: Re: re--CJD medical/surgical precautions
Date: Fri, 14 Jan 2005 09:13:16 -0600
From: "Terry S. Singeltary Sr."
To: Danielle Wong
References:


Hello again Danielle,

in this paper it states ;

> Instead of having Creutzfeldt-Jakob Disease, the brain disease that
> resembles the human form of mad cow disease, the patient had a
> condition in which the body's immune system attacks the brain and
> causes inflammation.


once again, could you please tell me what test you used to rule out
CJD or any human TSE ??? I am still waiting for an answer about
that???

>we have no reason to believe
>this individual has CJD but are completing testing as a precaution.
>

YOU would not have taken the precautions IF you did not think there
was a chance of this unfortunate person having CJD/TSE...


>brain tissue
>is being biopsied
>

YOU are aware that a brain biopsy CAN miss diagnosing human TSE?
IF the portion of the brain biopsied is not the part of the brain that is
TSE. THIS is very possible.

> But the patient, now receiving steroid treatment, is
> getting better, Caruana said. That is leading doctors to think he
> doesn't have CJD,


WHETHER or not you are aware of this, but some CJD victims
given High dose Steriods DO rally for a while before
succumbing to this disease.

SO again, i would be most interested in knowing exactly what
kind of test the hospital used to rule out CJD ?

THIS does not fall into the patient confidentiality laws.

YOUR hospital does have an obligation to the divulge this info
to the public. anything less will be viewed as being very suspicious.
nothing new to us about this though...happens all the time///

Thank You,

Terry S. Singeltary Sr.
CJD WATCH

Danielle Wong wrote:

>Dear Mr. Singeltary,
>Thanks for your interest. I was waiting to respond to your inquiry once
>the test results were back. As the article mentioned, the brain tissue
>is being biopsied and we continue to await results. As subsequent
>articles and other media have indicated, we have no reason to believe
>this individual has CJD but are completing testing as a precaution.
>
>
>Danielle Wong Moores
>Media Relations Manager
>MCG Health, Inc.
>1120 15th St., BA 8216
>Augusta, GA 30912
>706-721-9566
>706-721-5735 (fax)
>dwong@mail.mcg.edu
>
>
>
>>>>"Terry S. Singeltary Sr." 01/13/05 11:19 AM >>>
>>>>
>>>>
> final transmission, please reply......
>
>-------- Original Message --------
>Subject: re--CJD medical/surgical precautions
>Date: Wed, 12 Jan 2005 14:42:00 -0600
>From: "Terry S. Singeltary Sr."
>To: dwong@mail.mcg.edu
>
>
>
>Greetings Danielle,
>
>my name is Terry S. Singeltary Sr. and I belong to several groups,
>CJD Watch and CJD Voice. I lost my mother to hvCJD
>(Heidenhain Variant Creutzfeldt Jakob disease).
>anyway, we are aware of a surgical scare at your hospital from
>a suspect CJD case. THE media states that ;
>
>could you please tell us what the Definitive test was and what the
>findings
>were ???
>
>
>Thank you,
>
>kind regards,
>
>Terry S. Singeltary
>
>
>
>>But the patient, now receiving steroid treatments, is getting better,
>>
>>
>
>
>
>>Caruana said. That is leading doctors to think he doesn't have CJD,
>>
>>
>
>
>
>>which is invariably progressive and fatal, he said. Definitive test
>>results are expected today or Thursday.
>>
>>
>>
>
>
>Sr
>
>CJD Watch
>
>http://www.fortunecity.com/healthclub/cpr/349/part1cjd.htm
>
>
>
>
>
>
>
>
>
>






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