CC: cjdvoice@yahoogroups.com
Monthly creutzfeldt jakob disease statistics
Published:
Monday 2 August 2004
Reference number:
2004/0294
Definite and probable CJD cases in the UK:The Department of Health is
today issuing the latest information about the numbers of known cases of
Creutzfeldt Jakob disease. This includes cases of variant Creutzfeldt
Jakob disease (vCJD) - the form of the disease thought to be linked to
BSE. The position is as follows: in the PDF available.
As at 2nd August 2004
Summary of vCJD casesDeaths
Deaths from definite vCJD (confirmed): 104
Deaths from probable vCJD (without neuropathological confirmation): 38
Deaths from probable vCJD (neuropathological confirmation pending): 0
Number of deaths from definite or probable vCJD (as above): 142
Alive
Number of probable vCJD cases still alive: 5
Total number of definite or probable vCJD (dead and alive): 147
The next table will be published on Monday 6th September 2004
Referrals: a simple count of all the cases which have been referred to
the National CJD Surveillance Unit for further investigation in the year
in question. CJD may be no more than suspected; about half the cases
referred in the past have turned out not to be CJD. Cases are notified
to the Unit from a variety of sources including neurologists,
neuropathologists, neurophysiologists, general physicians,
psychiatrists, electroencephalogram (EEG) departments etc. As a safety
net, death certificates coded under the specific rubrics 046.1 and 331.9
in the 9th ICD Revisions are obtained from the Office for National
Statistics in England and Wales, the General Register Office for
Scotland and the General Register Office for Northern Ireland.
Deaths: All columns show the number of deaths that have occurred in
definite and probable cases of all types of CJD and GSS in the year
shown. The figures include both cases referred to the Unit for
investigation while the patient was still alive and those where CJD was
only discovered post mortem (including a few cases picked up by the Unit
from death certificates). There is therefore no read across from these
columns to the referrals column. The figures will be subject to
retrospective adjustment as diagnoses are confirmed...
snip...
http://www.dh.gov.uk/PublicationsAndStatistics/PressReleases/PressReleasesNotices/fs/en?CONTENT_ID=4087029&chk=lhYDN2
Greetings,
thought some still might be interested in sporadic CJD, here is latest to
March 2004 on sporadic CJD, however many different phenotypes they
may be;
http://www.eurocjd.ed.ac.uk/sporadic.htm
USA, still not reportable Nationally...
TSS
