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From:	Mariann Alicea (host-ssh235.res.openband.net)
Subject:	Re: anyone have a daughter with Rett Syndrome?
Date:	June 18, 2007 at 9:00 pm PST

In Reply to: anyone have a daughter with Rett Syndrome? posted by Rebecca Greene on May 23, 2007 at 11:17 am:

Hi, Rebecca: I am pasting you what little info I have about Dr.
Daphne Thomas - she has a daughter with Rett's Syndrome -- I
was the second grade teacher for Dr. Thomas' other daughter. She
and her husband do alot of fund raising, etc for Rett's. PS - I know
that if you do a Google search, Daphne's info will come up - she is
an M.,D. in northern virginia. Maybe she is someone with whom
you can speak. hope this helps -- Mariann

Dr. Daphne Thomas
...
"Opponents of (embryonic) stem cell research view it as destruction
of potential human life and are misinformed," said Dr. Daphne
Thomas, a Virginia physician whose 7-year-old daughter Alyssa
has Rett syndrome, a rare and fatal genetic disease.

"Please do not let poorly founded doubts ... hold back
opportunities to explore this area of research," Thomas told a news
conference as her severely mentally and physically disabled
daughter suffered several small seizures beside her.

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